This series showcases many of the resources, programs, educational training and other opportunities we offer.
Our tools are designed to transform the translational process so that new treatments and cures for disease can be delivered to patients faster. On the third Thursday of the month, speakers will present a topic that can directly aid clinical research study team members.
We encourage all faculty, staff and students to attend. There will be a question and answer period at the close of each lecture. If you have suggestions for future topics, feel free to contact us.
Next Lecture:
Thursday, December 15, 2022 | 1-2:30 pm
Research Participants Want to Know! What Are the Results of the Research?
Increasingly, research participants have reported an interest in learning the outcome of the research they have contributed to, however, relatively few studies have a formal plan to share research findings with the participants.
At our next Third Thursdays with the ICTR lecture, a panel of investigators will disclose the best communication methods for returning results, discuss IRB review of proposed dissemination plans, and offer strategies for deciding what information to return and the appropriate time to do so. Panelists will also share lessons learned from return of study results for various study types (e.g. observational, clinical trial, etc.)
Panelists:
- Liz Martinez, RN, BSN, CCRC, Research Participant Advocate, ICTR
- David Sullivan, MD, Professor of Molecular Microbiology and Immunology, Johns Hopkins Malaria Research Institute, Johns Hopkins Bloomberg School of Public Health, Johns Hopkins Center for Global Health
- Todd Brown, MD, PhD, Professor of Medicine, Johns Hopkins School of Medicine
- Larry Appel, MD, MPH, Professor of Medicine, Director, Welch Center for Prevention, Epidemiology and Clinical Research, Johns Hopkins School of Medicine
- Alicia Diggs, PhD, Vice Chair, National Community Advisory Board, MACS WIHS Combined Cohort Study & Manager, Office of Community Engagement, North Carolina-Chapel Hill Center for AIDS Research
Moderator:
Megan Kasimatis Singleton, JD, MBE, CIP
Associate Dean, Human Research Protections and Director of the Human Research Protections Program
Office of Human Subjects Research
Previous Lectures and Presentations:
Speakers:
Monica Guerrero Vazquez, MPH, MS
Executive Director, Centro SOL
Lindsay Cooper, MA
Senior Research Program Coordinator, Centro SOL
Contact Monica Guerrero Vazquez at mguerre3@jhmi.edu for additional information.
Speakers:
Cassie Lewis-Land, MS, CCRP
Program Administrator for the ICTR Recruitment Innovation Unit
Lorraine Cleary
Account Executive
Twilio
Contact Cassie Lewis-Land at research_recruitment@jhmi.edu for additional information.
Speakers:
Dan Ford, MD, MPH
Director, ICTR
Cassie Lewis-Land, MS, CCRP
Program Administrator for the ICTR Recruitment Innovation Unit
Liz Martinez, RN, BSN, CCRC
Research Participant Advocate
Contact Liz Martinez at liz@jhmi.edu for additional information.
Speakers:
Suzanne Jan de Beur, MD
Director, Bayview CRU
Director, CRU Network
Todd Brown, MD, PhD
Director, Broadway Adult Outpatient CRU
Contact the CRUs at crus@jhmi.edu for additional information.
Speakers:
Richard Zhu
Sr. Software Engineer
Johns Hopkins School of Medicine
Scott Carey
Research Informatics Manager
Johns Hopkins School of Medicine
Contact Scott Carey at scarey@jhmi.edu and Richard Zhu at zhu@jhu.edu for additional information.
Speakers:
Dan Hanley, MD
Deputy Director, ICTR Support and Innovation in Multi-center Trials
Johns Hopkins School of Medicine
Charles Flexner, MD
Chief Scientific Officer for Strategy and Integration
Johns Hopkins School of Medicine
Contact us at ictr@jhmi.edu for additional information.
Slides
Video Password: ICTR-3182021
Speaker:
Cassie Lewis-Land, MS, CCRP
Program Administrator for the ICTR Recruitment Innovation Unit
Contact the HOPE registry team at HOPERegistry@jhu.edu for additional information.
Slides
Video
HOPE Registry for Researchers Website
HOPE Registry Patient/Volunteer Website