COVID-19 Precision Medicine Analytics Platform (PMAP) Registry (JH-CROWN)
The JH-CROWN registry is a collection of information about patients having suspected or confirmed COVID-19 infection.
The main data source is Johns Hopkins’ electronic medical record, Epic, but the registry also includes data from other sources such as physiologic device monitoring systems, Research Electronic Data Capture (REDCap), and biospecimen repositories. The registry is securely hosted on the Precision Medicine Analytic Platform (PMAP), a research discovery platform supporting data exploration and analysis developed by the Johns Hopkins inHealth initiative, a collaboration between the schools of Medicine and Public Health, the Johns Hopkins Applied Physics Laboratory, the Technology Innovation Center, and the Institute for Clinical and Translational Research. The registry is refreshed weekly with new and updated data and is available for Johns Hopkins investigators to analyze subsets of the COVID-19 patient population for retrospective analyses.
Data Elements Overview
The following data elements are currently available or will soon be available in the JH-CROWN registry. Note that explicit IRB approval is required to gain access to protected health information. Data can also be delivered as a HIPAA limited dataset or a fully de-identified dataset. Please contact Diana Gumas at firstname.lastname@example.org if you have questions.
For details, expand each title.
Other Available Tables
+ Geocode Patient
+ Geocode Patient Visit
+ Enroll Info