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Celebrate Rare Disease Day

JH Rare Disease Day 2025

This year, we are hosting an in-person event from 9:00 am-4:00 pm that will include a series of exciting panel discussions focused on the experiences of patients, advocates, researchers, and providers in the rare disease space. There will also be a tabling event featuring local Rare Disease Patient Advocacy Groups and specialty clinics at JH and KKI that regularly see patients with rare conditions.