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Celebrate Rare Disease Day

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Wear your stripes on February 27, 2026 to celebrate, advocate, & raise awareness for rare conditions across institutions!

Learn and engage with an exciting educational symposium focused on rare patient experiences, research updates, therapeutic development, multidisciplinary care, and more. Explore and network at the Advocacy Fair and Rare Art Exhibit, featuring local rare disease patient advocacy groups, specialty clinics and research groups from Johns Hopkins and KKI, as well as other resources related to the Rare Experience. Crafts and light refreshments will be provided. All are welcome; come and go as your schedule allows or join us all day.