Tag Archive: Research Study Participant

Research Participant Satisfaction Survey


In July 2016, the Johns Hopkins Institute for Clinical and Translational Research randomly selected 500 participants from the Clinical Research Management Services list to receive a survey by email if they were involved in a research study at Johns Hopkins within the last 6 months. The survey, adapted from Kost et al Clin Trans Sci 2014 Dec;7(6):430-40, asked a variety questions, including why it is important for them to join a study, and to rate the care they received from the research team. The response rate was 34%. This survey will be administered semi-yearly. Survey Results February 2019 July 2018 January 2018 Sept … Continue reading

Research Participant Advocate


Research Participant Advocate The RPA serves as a resource to volunteers. Contact us for an independent witness to the consent process, to serve on the volunteers behalf in the case of a misunderstanding between the volunteer and study team, or to provide information about research in general or a specific protocol. The Research Participant Advocacy Office provides consulting expertise on human subjects and regulatory issues, including IRB applications, the informed consent process, study feasibility and good clinical practice (GCP). Contact us for quick expert help. The RPA reviews applications to the Clinical Research Unit to assure high standards for Human … Continue reading

Community Research Advisory Council


The Community Research Advisory Council creates a forum for patients and diverse stakeholders to help shape research conducted at Johns Hopkins. Continue reading

Become a Research Participant


Institution Review Boards Johns Hopkins researchers partner with groups throughout the state and the nation to conduct many different kinds of health research studies, including clinical trials. Studies may involve participants with specific health conditions as well as healthy volunteers. If you are considering participating in a study, it may be helpful to view the video below to learn about the Institutional Review Board (IRB).  The IRB oversees all human subject clinical research studies performed at our institute to ensure that they are done ethically and safely.   Finding a Study Many people might consider participating in research but do … Continue reading