Tag Archive: PATIENT RECRUITMENT

My Chart/Epic Based Recruitment


Through Epic, we now have the ability to invite patients to studies using MyChart. Inviting patients to participate in research studies through MyChart is a new recruitment approach. In an effort to reduce unnecessary communication, the messages are targeted to patients who may be interested and eligible for studies.  The use of MyChart for recruitment requires IRB approval, and extensive care is taken to protect patient privacy. To safeguard patient privacy, PIs and research teams will not be able to see PHI. Patients can always opt out of receiving future invitations through MyChart.  A patient may either email us at … Continue reading

Events and Workshops for Researchers


May 31, 2017 Improving Long Term Outcomes Research On Wednesday, May 31 from 10-11 AM in Tilghman Auditorium, Dale Needham, MD, PhD and his research team will present the many FREE resources for conducting clinical research, funded by his National Heart Lung and Blood Institute R24 national infrastructure grant. This grant has created resources for clinical researchers conducting longitudinal follow-up studies, including: a database of common patient-reported and performance-based outcome measurements and standardized information about them; adaptable tools, templates, and manuals to maximize retention of research participants, including an interactive searchable database of >600 retention strategies; a statistical tool to … Continue reading

CRISP Database


Chesapeake Regional Information System for our Patients CRISP is a regional health information exchange (HIE) serving Maryland and the District of Columbia. This a non-profit organization is advised by a wide range of stakeholders who are responsible for healthcare throughout the region. CRISP has been formally designated as Maryland’s statewide health information exchange by the Maryland Health Care Commission. Health information exchange allows clinical information to move electronically among disparate health information systems. The goal of the HIE is to deliver the right health information to the right place at the right time – providing safer, timelier, efficient, effective, equitable, … Continue reading

Cohort Retention


Improving Long Term Outcomes Research This NIH-funded “national infrastructure” grant (R24HL111895), aims to provide resources for longitudinal clinical research studies. The following resources are freely available from the project’s website (www.improveLTO.com): Database of common surveys and tests for evaluating physical, cognitive, mental health, and quality of life outcomes, and standardized information about these measures. http://www.improvelto.com/instruments/ Adaptable tools, templates, and manuals to maximize cohort retention (including an interactive searchable database with >600 retention strategies abstracted from a systematic review). http://www.improvelto.com/cohort-retention-tools A standalone statistical application to address “truncation due to death” when evaluating functional outcomes. http://www.improvelto.com/stats-tools/

Truven Health MarketScan® Research Databases


The Truven Health MarketScan® Research Databases capture person-specific clinical utilization, expenditures, and enrollment across inpatient, outpatient, prescription drug, and carve-out services. The data comes from a selection of large employers, health plans, and government and public organizations. The MarketScan Research Databases link paid claims and encounter data to detailed patient information across sites and types of providers and over time. The annual medical databases include private-sector health data from approximately 100 payers. Historically, more than 500 million claim records are available in the MarketScan databases. These databases represent the medical experience of insured employees and their dependents for active employees, … Continue reading

Participant Recruitment Consultations


We provide consultation and coaching on the recruitment and retention of diverse research participants using evidence based and ‘field tested’ methods. Staff offer advice and guidance to help investigators and research staff identify and address recruitment barriers.  Our consultants have experience with technology and community-engaged recruitment strategies.  Below are two examples of our services Technology Based Recruitment   The Recruitment & Retention Consultants helped a research team recruit adults with chronic kidney disease by collaborating with the Center for Clinical Data Analtyics, experts in the use of electronic health records for recruitment.  For more information go to Technology Based Recruitment … Continue reading

Participant Recruitment Resources


The following programs offer participant recruitment resources: Budgeting Johns Hopkins Medicine: Office of Research Administration Community Engagement Community Engagement Program Johns Hopkins Center for Excellence in Latino Health Johns Hopkins Office of Community Health Johns Hopkins Urban Health Institute List of Community Organizations Partnering with Hopkins Ethics and Regulatory Issues Research Ethics Consult Research Participant Advocates: Consultant Service Institutional Review Board Marketing Johns Hopkins Medicine: Marketing and Communications Media, Marketing, & Communications at Johns Hopkins Bayview Recruitment Recruitment Consultation & Coaching Research Centers Johns Hopkins Research Centers (by population or health topic) Research Coordinators Research Coordinator Support Service Trial Innovation … Continue reading

Training Video Library


The Participant Recruitment and Retention Program has compiled training videos that address common recruitment challenges. Research teams are encouraged to use the information to enhance their recruitment efforts. Note: Some of the materials require a JHED identification to access. Recently Added Talks Building Trust, Engaging Communities & Disseminating Results Measuring the Impact of Recruitment Efforts Electronic Recruitment Methods Digital Recruitment Practical Guidance on the Use of Social Media for Recruitment Community-Engaged Recruitment Innovative Tools to Reach Participants Prior Trainings Budgeting Budgeting for Recruitment  Communication Skill Building Communication Skills to Enhance Recruitment, Part 1 Communication Skills to Enhance Recruitment, Part 2 … Continue reading

Participant Recruitment & Retention Support


The Participant Recruitment & Retention Program of the Johns Hopkins Institute for Clinical and Translational Research, established in 2007, offers investigators and research teams training, consultation, and a toolkit of evidence-based, field-tested recruitment practices. Services have been developed and offered in collaboration with experts in information technology, ethics, and patient- and community-engagement. Each year, workshops, hands on seminars, and customized support are provided to help researchers achieve their recruitment goals. Since its formation, over 1000 investigators and research teams have received recruitment training and support. This includes a broad range of federally funded, multi-site clinical trials and research programs funded … Continue reading