Tag Archive: NIH

ICTR in the News: Recordings Reveal Deep Credibility Gap When Doctors And Parents Discuss Outcomes For Critically Ill Infants


The following article profiles work performed by ICTR researcher Renee Denise Boss, M.D., associate professor of pediatrics at the Johns Hopkins University School of Medicine. An analysis of 16 audiotaped conversations between parents of infants in a neonatal intensive care unit (NICU) and clinicians found that medical staff routinely downplay quality of life issues and leave families more optimistic about their babies’ prognoses than the clinicians intended. A report of the analysis, published in the Nov. issue of the Journal of Perinatology, highlights a persistent gap between family and clinician understanding of infant outcomes, and the need for clearer communications … Continue reading

Research Participant Satisfaction Survey


In July 2016, the Johns Hopkins Institute for Clinical and Translational Research randomly selected 500 participants from the Clinical Research Management Services list to receive a survey by email if they were involved in a research study at Johns Hopkins within the last 6 months. The survey, adapted from Kost et al Clin Trans Sci 2014 Dec;7(6):430-40, asked a variety questions including why it is important for them to join a study and to rate the care they received from the research team. The response rate was 34%. This survey will be administered semi-yearly. Survey Results January 2018 Sept 2017 Survey  (Conducted by … Continue reading