Tag Archive: Informatics

Informatics Consult

The ICTR Informatics Core is piloting a new informatics consult service for researchers starting in January 2019.  Researchers who are preparing to submit a grant or preparing their IRB protocol and who need information and guidance regarding data, technology, and related cost and governance matters are encouraged to apply for this free consult service. During the pilot period we will hold one 90 minute informatics consult session each month with up to three study teams attending each informatics consult session. The informatics consult sessions will be attended by Dr. Christopher Chute, Diana Gumas, and invited guests as required to address the … Continue reading

Natural Language Processing (NLP)

Natural Language Processing (NLP) is a programming technique to find and extract data of interest from text documents. NLP can sometimes involve a simple search for known text strings but is often more complex due to the ways that human beings use language. For example, the concept of smoking could be expressed in many different ways in a text document, such as “has never smoked”, “used to smoke 3 packs a day”, “recently quit smoking”, “is in a smoking cessation program”. The Center for Clinical NLP, with faculty and staff from the Johns Hopkins School of Medicine, the Johns Hopkins … Continue reading

Data Trust

The Data Trust provides Johns Hopkins Medicine with the technical infrastructure, standards, policies and procedures, and organization needed to bring together patient and member-related data from across the health system to support our mission. The goals of the Data Trust are to: Ensure security and privacy of our patients’ data. Consolidate teams to address organizational priorities and reduce redundancy. Increase the value of data through better integration and analytics. Investigators may be referred for a Data Trust review if their study meets certain review triggers, such as the sending of identifiable patient data outside of Johns Hopkins or storing large amounts … Continue reading

Precision Medicine Analytics Platform (PMAP)

The mission of the Johns Hopkins Precision Medicine Analytics Platform is to “revolutionize the capacity of health centers to continuously improve their patient and population health outcomes at more affordable costs through modern data science and rigorous systems engineering practices.” The vision of PMAP is to: Accelerate biomedical discovery Accelerate translation of discovered knowledge to improve the delivery of patient-centered care Increase efficiency and effectiveness of clinical care and discovery Provide a platform for extending JHM excellence to expanded populations The PMAP platform, as seen in the following diagram, pulls data from the Epic Medical Record and other data sources … Continue reading

Informatics Grant Text

Investigators are encouraged to use the following text for their grants. If you need grant text for a topic not listed below, please contact Diana Gumas.

ICTR in the News: Electronic Health Records Need Organizing System

Abundance of Electronic Health Information Requires Organizing System to Make Best Use of Data The following article discusses the published work of ICTR Deputy Director of Informatics, Dr. Christopher Chute. Credit: iStock The rate at which electronic health data is accumulating is unprecedented, a Johns Hopkins health informatics expert notes in a review published Oct. 12 in the New England Journal of Medicine. To best make use of available information for personalized or precision medicine purposes, health organizations should consider using ontologies, a means of naming and organizing the information into categories for easier retrieval. Christopher G. Chute Credit: Johns … Continue reading

Program to Accelerate Clinical Research Using EPIC (PACE)

PACE was established to help clinical researchers take full advantage of tools within the EPIC Electronic Health Record system for their research projects. We design and build customized EPIC content for your project to enhance the efficiency and standardization of the data collection process and improve data quality. Potential applications of customized EPIC build are numerous, some typical scenarios include: Tools that help providers to collect discrete data on a population of interest (such as longitudinal studies). This may include documentation flowsheets and SmartForms as well SmartSets that help populate Epic data fields in a standardized way. It may also … Continue reading

OpenSpecimen Tracking

OpenSpecimen (formerly caTissue) is a bio-bank management tool used to collect, manage, process, annotate and distribute bio-specimens and associated data to selected users.  At Johns Hopkins, OpenSpecimen is currently being used in Gastroenterology, Cardiology and Oncology. OpenSpecimen offers a comprehensive feature set, including: Biospecimen collection, inventory, and tracking Ability to track specimen events (thaws, spins, etc.) Customizable support for storage containers (i.e. freezers, shelves, racks, boxes, position) User-definable forms for patient, collection event, and specimen annotations Flexible specimen ordering and distribution workflows Graphical custom report builder Integrated bulk loading capabilities for existing data Support for multiple biorepositories and locations Mailing … Continue reading

Protection of Patient Data

Johns Hopkins has multiple IT policies regarding the protection of patient data. Diana Gumas, Senior Director for Clinical Research Information Technology, is responsible for working with the Johns Hopkins Medicine Data Trust, the Institutional Review Boards, and the clinical research community to facilitate compliance with policies and address and resolve special data protection needs. The goals of our data protection policies are to ensure compliance with all applicable federal, state, and local law; to safeguard and protect all IT Resources from anything other than authorized and intended use; and to provide protection to academic, clinical, financial, research, and all other … Continue reading


REDCap is a mature, secure web application for building and managing online surveys and databases. Using REDCap’s stream-lined process for rapidly developing projects, you may create and design projects using the online method from your web browser using the Online Designer and/or the offline method by constructing a ‘data dictionary’ template file in Microsoft Excel, which can be later uploaded into REDCap. Both surveys and databases (or a mixture of the two) can be built using these methods. REDCap provides automated export procedures for seamless data downloads to Excel and common statistical packages (SPSS, SAS, Stata, R), as well as … Continue reading

Qualtrics Survey

What is Qualtrics? Qualtrics is the world’s leading enterprise survey company, used by 1,300 colleges and universities worldwide, including every major university in the United States. Qualtrics makes it easy to create and distribute engaging surveys. Qualtrics is free for use by all School of Medicine faculty, students and staff for research, evaluations, event registration and more. Surveys can be created and distributed by anyone with a current university login. In order to protect sensitive data, please use Qualtrics instead of Survey Monkey for your surveys. Beyond regular surveys, Qualtrics provides a rich set of features, including the ability to support: Sharing survey design … Continue reading