Tag Archive: Community

Service Request: Participant Recruitment

We provide consultation and coaching on the recruitment and retention of diverse research participants using evidence based and ‘field tested’ methods. Staff offer advice and guidance to help investigators and research staff identify and address recruitment barriers.  Our consultants have experience with technology and community-engaged recruitment strategies.  Below are two examples of our services Technology Based Recruitment   The Recruitment & Retention Consultants helped a research team recruit adults with chronic kidney disease by collaborating with the Center for Clinical Data Analtyics, experts in the use of electronic health records for recruitment.  For more information go to Technology Based Recruitment … Continue reading

Service Request: Community Engagement Program Consult

The Community Engagement Program offers individualized Community Research Advisor Consultations to researchers seeking: Community and patient input on research proposal design Assistance identifying potential community partners Guidance on survey design and administration All consultations are delivered by Community Research Advisory Council, a panel of experts comprised of academic researchers, health care professionals and community members. To request a consultation complete and submit a Connection Request or contact Crystal Evans.

MyChart Recruitment Messages

Johns Hopkins Medicine is committed to supporting the discovery of new ways to improve the care and outcomes for patients. Patients throughout the Johns Hopkins Health System have access to a network of clinical research studies for many different conditions. In November 2016, the Johns Hopkins Research Participant Recruitment and Retention Program piloted a program to inform patients of research studies through automated MyChart Recruitment Messages. Our goal is to empower patients by connecting them with clinical research studies that may be of interest to them. In a recent survey, we assessed what patients think about MyChart research invitations; 90 … Continue reading

2016 Honoring Henrietta Lacks: Her Impact and Our Outreach

2016 Lecture Video 2016 Honoring Henrietta Lacks: Her Impact and Our Outreach Video Damon Tweety, MD & Redonda Miller, MD The annual Henrietta Lacks Memorial Lecture is one of the Johns Hopkins Institute for Clinical and Translational Research’s many educational programs that focus on increasing awareness of her impact on biomedical research and society. “Students are the next generation of doctors, researchers and scientists, so to get them exposed to the story of Henrietta Lacks and see the mistakes that were made and how we are moving forward, the possibilities are endless,” says David Lacks, grandson of Henrietta Lacks. Watch … Continue reading

2015 Henrietta Lacks Memorial Lecture

2015 Henrietta Lacks Memorial Lecture Video    The Johns Hopkins Institute for Clinical and Translational Research (ICTR) invites you to attend the Henrietta Lacks Memorial Lecture on Saturday, October 10, 2015, in Turner Auditorium on the Johns Hopkins East Baltimore (Medical) Campus. The keynote speaker is Dr. Ruha Benjamin, assistant professor, Princeton University and author of People’s Science: Bodies and Rights on the Stem Cell Frontier.  Special guest presenters include Dr. and Mrs. Roland Pattillo, Morehouse College; Dr. John Joseph Strouse, assistant professor, Johns Hopkins School of Medicine; and members of the Lacks family. Copies of Dr. Benjamin’s book will … Continue reading

2014 Marks the Fifth Annual Henrietta Lacks Lecture at Johns Hopkins

2014 Henrietta Lacks Memorial Lecture Video (due to technical difficulties, the program begins at the 56:45 time mark) The Johns Hopkins Institute for Clinical and Translational Research hosted the fifth annual Henrietta Lacks Memorial Lecture Saturday, honoring the memory of the woman whose cells have led to countless research breakthroughs since her death 63 years ago. Dorothy Roberts, author of Fatal Invention: How Science, Politics, and Big Business Re-Create Race in the Twenty-First Century, delivered the event’s keynote address. Roberts, a University of Pennsylvania professor of Law, Africana Studies and Sociology, cited Lacks’ case to address the topic of justice … Continue reading

Community Research Advisory Council

The Community Research Advisory Council creates a forum for patients and diverse stakeholders to help shape research conducted at Johns Hopkins. Continue reading

Become a Research Participant

Institution Review Boards Johns Hopkins researchers partner with groups throughout the state and the nation to conduct many different kinds of health research studies, including clinical trials. Studies may involve participants with specific health conditions as well as healthy volunteers. If you are considering participating in a study, it may be helpful to view the video below to learn about the Institutional Review Board (IRB).  The IRB oversees all human subject clinical research studies performed at our institute to ensure that they are done ethically and safely.   Finding a Study Many people might consider participating in research but do … Continue reading

2013 Lecture Honors Henrietta Lacks’ Legacy

2013 Henrietta Lacks Memorial Lecture Video Gary Gibbons, M.D., director of the National Heart, Lung, and Blood Institute of the National Institutes of Health, delivered the keynote address at Saturday’s Fourth Annual Henrietta Lacks Memorial Lecture, sponsored by the Johns Hopkins Institute for Clinical and Translational Research. Gibbons spoke to nearly 1,000 attendees about the importance of community involvement in scientific and medical research. A young mother of five from eastern Baltimore County, Henrietta Lacks died in 1951 of an aggressive cancer, despite radiation treatment at The Johns Hopkins Hospital. The small tissue sample taken from Mrs. Lacks yielded cells … Continue reading

A New Chapter in the Legacy of Henrietta Lacks 2012

2012 Henrietta Lacks Memorial Lecture Video More than 500 community members and Johns Hopkins employees gathered with members of the Henrietta Lacks family to honor a woman whose contributions continue to further science more than 60 years after her death. The Third Annual Henrietta Lacks Memorial Lecture, featured a lecture by science journalist and author David Ewing Duncan, presentations from Johns Hopkins leadership and the awarding of a new educational scholarship named after Mrs. Lacks. The half-day event, which, concluded with a lunch reception and book signing, was held October 6th in Turner Auditorium. Keynote speaker David Ewing Duncan gave … Continue reading

Training Video Library

The Participant Recruitment and Retention Program has compiled training videos that address common recruitment challenges. Research teams are encouraged to use the information to enhance their recruitment efforts. Note: Some of the materials require a JHED identification to access. Recently Added Talks Building Trust, Engaging Communities & Disseminating Results Measuring the Impact of Recruitment Efforts Electronic Recruitment Methods Digital Recruitment Practical Guidance on the Use of Social Media for Recruitment Community-Engaged Recruitment Innovative Tools to Reach Participants Prior Trainings Budgeting Budgeting for Recruitment  Communication Skill Building Communication Skills to Enhance Recruitment, Part 1 Communication Skills to Enhance Recruitment, Part 2 … Continue reading