Tag Archive: Community

Community & Stakeholder Engagement


  The Community Engagement Program of the Johns Hopkins Institute for Clinical and Translational Research aims to bring researchers, diverse communities, and stakeholders together to share their knowledge, skills and resources with a common goal of improving community health. Community Engaged Research Training We offer introductory and advanced training in community engaged research.  Training topics include:  Planning and evaluating community engagement in research; disseminating research findings to the public; building and sustaining research partnerships. All training is delivered by Johns Hopkins faculty and staff in collaboration with the Community Research Advisory Council. The council includes academic researchers, health care professionals … Continue reading

Kevin Sowers is Named President of the Johns Hopkins Health System and Executive Vice President of Johns Hopkins Medicine


Kevin W. Sowers, M.S.N., R.N., F.A.A.N., a distinguished clinician, educator and academic health care leader has been appointed president of the Johns Hopkins Health System and executive vice president of Johns Hopkins Medicine, an $8 billion academic medical center and health system. He is the second person to hold this role. Sowers joins Johns Hopkins Medicine after 32 years with the Duke University Health System, where for the last eight years he has served as president and CEO of Duke University Hospital. The boards of trustees for Johns Hopkins Health System, Johns Hopkins University and Johns Hopkins Medicine approved his … Continue reading

The Henrietta Lacks Memorial Lecture


The Johns Hopkins ICTR is privileged to be the establishing sponsor of the Henrietta Lacks Memorial Lecture Series. The goal of the series is to honor Henrietta Lacks and the positive global impact of HeLa cells. This series will also serve as an annual reminder of the gratitude, respect, and clear communication due to all research participants. Keeping biomedical research connected to the people it is intended to serve is an ongoing process rooted in the open exchange of ideas among all stakeholders. To facilitate this process, speakers for the Henrietta Lacks Memorial Lecture Series are selected for their ability to … Continue reading

Events and Workshops for Researchers


To see event summaries from other related workshops, please visit our news feed. Advancing Research in the Digital Age February 27, 2018 This conference focused on building institutional knowledge around research consenting, recruiting and data collection in the informatics age. The goal is to help Johns Hopkins researchers learn what digital technologies are available and how to utilize these tools in human subject research. Agenda Webcast Presentations   Nuts & Bolts of Community Engagement in Research Workshop   December 1, 2017 This event was hosted by the ICTR in collaboration with the University of Maryland and Morgan State University.  A diverse … Continue reading

Research Participant Advocate


Research Participant Advocate The RPA serves as a resource to volunteers. Contact us for an independent witness to the consent process, to serve on the volunteers behalf in the case of a misunderstanding between the volunteer and study team, or to provide information about research in general or a specific protocol. The Research Participant Advocacy Office provides consulting expertise on human subjects and regulatory issues, including IRB applications, the informed consent process, study feasibility and good clinical practice (GCP). Contact us for quick expert help. The RPA reviews applications to the Clinical Research Unit to assure high standards for Human … Continue reading

Service Request: Participant Recruitment


We provide consultation and coaching on the recruitment and retention of diverse research participants using evidence based and ‘field tested’ methods. Staff offer advice and guidance to help investigators and research staff identify and address recruitment barriers.  Our consultants have experience with technology and community-engaged recruitment strategies.  Below are two examples of our services Technology Based Recruitment   The Recruitment & Retention Consultants helped a research team recruit adults with chronic kidney disease by collaborating with the Center for Clinical Data Analtyics, experts in the use of electronic health records for recruitment.  For more information go to Technology Based Recruitment … Continue reading

Service Request: Community Engagement Program Consult


The Community Engagement Program offers individualized Community Research Advisor Consultations to researchers seeking: Community and patient input on research proposal design Assistance identifying potential community partners Guidance on survey design and administration All consultations are delivered by Community Research Advisory Council, a panel of experts comprised of academic researchers, health care professionals and community members. To request a consultation complete and submit a Connection Request or contact Crystal Evans.

MyChart Recruitment Messages


Johns Hopkins Medicine is committed to supporting the discovery of new ways to improve the care and outcomes for patients.  Patients throughout the Johns Hopkins Health System have access to a network of clinical research studies for many different conditions.  In November 2016, the Johns Hopkins Research Participant Recruitment and Retention Program piloted a program to inform patients of research studies through automated My Chart Recruitment Messages.  Our goal is to empower patients by connecting them with clinical research studies that may be of interest to them. In a recent survey, we assessed what patients think about MyChart research invitations; … Continue reading

Community Research Advisory Council


The Community Research Advisory Council creates a forum for patients and diverse stakeholders to help shape research conducted at Johns Hopkins. Continue reading

Become a Research Participant


Institution Review Boards Johns Hopkins researchers partner with groups throughout the state and the nation to conduct many different kinds of health research studies, including clinical trials. Studies may involve participants with specific health conditions as well as healthy volunteers. If you are considering participating in a study, it may be helpful to view the video below to learn about the Institutional Review Board (IRB).  The IRB oversees all human subject clinical research studies performed at our institute to ensure that they are done ethically and safely.   Finding a Study Many people might consider participating in research but do … Continue reading

Training Video Library


The Participant Recruitment and Retention Program has compiled training videos that address common recruitment challenges. Research teams are encouraged to use the information to enhance their recruitment efforts. Note: Some of the materials require a JHED identification to access. Recently Added Talks Building Trust, Engaging Communities & Disseminating Results Measuring the Impact of Recruitment Efforts Electronic Recruitment Methods Digital Recruitment Practical Guidance on the Use of Social Media for Recruitment Community-Engaged Recruitment Innovative Tools to Reach Participants Prior Trainings Budgeting Budgeting for Recruitment  Communication Skill Building Communication Skills to Enhance Recruitment, Part 1 Communication Skills to Enhance Recruitment, Part 2 … Continue reading