Service Request: Core for Clinical Research Data Acquisition
The Core for Clinical Research Data Acquisition (CCDA) assists researchers with accessing clinical data for research purposes. Services include:
- Preliminary, anonymous data for feasibility, grant applications and statistical sample-size estimates
- IRB-approved case-finding–for study enrollment (mailings, phone solicitation), chart review, and cohort/case-control studies
- Research data extracts – monthly/quarterly integrated extracts from Epic, EPR, Sunrise/POE, and CaseMix/Data Mart
The CCDA is staffed with experienced data analysts who will assist you with access to data while also helping you comply with Data Trust privacy and security regulations. Here is how it works:
Submit a request for CCDA services using our new iLab application: https://johnshopkins.corefacilities.org/service_center/show_external/3796. Please note that to request CCDA services, you are required to be a member of a lab. If you are not a lab member, please follow the instructions in the JHU End User Guide to register for iLab, which is linked to the Request Services tab.
- You will receive an email response, usually within one to two business days.
- You will receive 2 free hours of service underwritten by the ICTR. This usually covers an initial meeting to discuss your request in detail, a feasibility assessment, a written specification, and an estimate of hours to complete. Please note that it will usually take a minimum of 1 week to have an analyst available to start work. We will communicate the start date when we deliver the estimate of work.
- Requests for guidance or for simple patient counts may be able to be completed within the 2 free hours. More complex counts may extend beyond the 2 free hours.
- Data extraction projects usually range from 8 hours to 150 hours depending on complexity. The cost for CCDservices is $84/hr for standard services and $100/hr for senior analyst consulting.
CCDA also has access to SlicerDicer, an Epic-specific self-service tool currently in the pilot testing phase, which should become available to all users in early 2017. Using this tool, the CCDA can often provide rough counts on the number of patients who meet simple inclusion and exclusion criteria based on demographics, diagnoses, and lab data from Epic.
We look forward to assisting you with your data needs.
IT Program Manager