Research Participant Satisfaction Survey

In July 2016, we randomly selected 500 participants from the Clinical Research Management Services list to receive a survey by email if they were involved in a research study at Johns Hopkins within the last 6 months. This survey will be administered semi-yearly.

 

Sample Questions

  • What is your overall experience in a research study?
  • Would you recommend joining a research study to your family and friends?
  • What are your reasons for joining a study?
  • Did the informed consent form prepare you for what to expect during the study?
  • Did the information and discussions you had before participating in the research study prepare you for your experience in the study?
  • How satisfied were you with the research team?
  • How satisfied were you with research process?
  • What things that would be important for participants in a future study?

Results

August 2019

February 2019

July 2018

January 2018

Sept 2017  (Conducted by Research America to determine the factors that contribute to a lack of minority participation in clinical trials.)

July 2017

December 2016

July 2016

 

 


The survey was adapted from Kost et al Clin Trans Sci 2014 Dec;7(6):430-40. Any publication including mention of the use of the Instruments shall include appropriate reference to their origin or citation when available, and acknowledgement of  grant number UL1 TR000043 as follows: “Supported in part by grant # UL1 TR000043 from the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health (NIH) Clinical and Translational Science Award (CTSA) program.”