Events and Workshops for Researchers
Advancing Research in the Digital Age
February 27, 2018
This conference focused on building institutional knowledge around research consenting, recruiting and data collection in the informatics age. The goal is to help Johns Hopkins researchers learn what digital technologies are available and how to utilize these tools in human subject research.
Nuts & Bolts of Community Engagement in Research Workshop
December 1, 2017
This event was hosted by the ICTR in collaboration with the University of Maryland and Morgan State University. A diverse group of patients, community board members, research participants, study team members, and students reviewed the principles, common challenges and possible solutions to advance the science and practice of community engaged research. Small group breakout sessions were designed to promote skill building in:
- Budgeting for community engaged research
- Power sharing and collaboration
- Understanding research and the contribution of community partners
Post the event, participants reported increased knowledge and skills in domains of community engaged research.
Community Engaged Research Seminar
October 3, 2017
This seminar was very well attended (over 150 guests) and featured speakers C. Daniel Mullins, PhD, professor and chair of the Pharmaceutical Health Research Service Department at the University of Maryland and Franklin Lance, D.Min, Pastor of Mount Lebanon Baptist Church. Both shared insight on the best practices for building and sustaining community engaged research partnerships.
In the weeks following the seminar, representatives from the University of Maryland, Morgan State University, Johns Hopkins University and various community based organizations, met to discuss ongoing community engaged research and service projects in our region; project needs for expertise and resources; and practical steps to advance our collaborations. They also provided input for the next community engagement workshop, the Nuts & Bolts of Community Engagement in Research, held December 1, 2017 on the Johns Hopkins campus.
Improving Long Term Outcomes Research
May 31, 2017
Dale Needham, MD, PhD and his research team presented the many FREE resources for conducting clinical research, funded by his National Heart Lung and Blood Institute R24 national infrastructure grant.
- This grant has created resources for clinical researchers conducting longitudinal follow-up studies, including:
a database of common patient-reported and performance-based outcome measurements and standardized information about them;
- adaptable tools, templates, and manuals to maximize retention of research participants, including an interactive searchable database of >600 retention strategies;
- a statistical tool to address “competing risk of mortality” when evaluating functional outcomes.
For additional information, please contact Dr. Dale Needham’s group at improveLTO@jhmi.eduor visit their site www.improveLTO.com.
Lunch & Learn: Recruiting and Retaining Teens and Other Diverse Populations in Research
May 12, 2017
Speakers: Anthony Morgan, Senior Research Program Coordinator and Cassie Land, MS, Research Program Manager
- Successful techniques focused in usage of technology to recruit and retain adolescents in research
- Presentation of a case study that demonstrated best practices for recruitment and retention in sexual health research study of minority LGBTQ youth
- Discussion of lessons learned in recruitment and retention that can be applied to other diverse populations
To view the webcast, visit: https://webcast.jhu.edu/Mediasite/Play/0c487fbb80ad41698c5a894a6c8fa5f41d
Progress in Stakeholder Engaged Research Forum
March 31, 2017
This forum brought together 54 researchers, patients, and members of the C-RAC to reflect on their experiences in planning, implementing, and evaluating stakeholder engaged research. Through plenary and break-out discussions, researchers and stakeholders established a plan to increase stakeholder involvement in the next phase of the ICTR. Strategies, tools, and collaborations necessary to advance the quality and impact of community engaged research were identified. The C-RAC is instrumental in guiding our approach to operationalize these recommendations with plans to increase community access to research opportunities and resources.
Research Participant Recruitment & Retention Conference
September 9, 2016
This conference welcomed nationwide and local research professionals, various stakeholders and study team members to discuss best practices and innovative strategies for research participant recruitment.
The conference showcased the following:
- Best practices and novel strategies for participant recruitment and retention using case studies.
- Skill building sessions on social media recruitment and community-engaged recruitment strategies.
- Poster presentations displaying successful approaches, best practices, case studies or problem solving techniques.