Research Participant Satisfaction Survey
In July 2016, the Johns Hopkins Institute for Clinical and Translational Research randomly selected 500 participants from the Clinical Research Management Services list to receive a survey by email if they were involved in a research study at Johns Hopkins within the last 6 months. The survey, adapted from Kost et al Clin Trans Sci 2014 Dec;7(6):430-40, asked a variety questions including why it is important for them to join a study and to rate the care they received from the research team. The response rate was 34%. This survey will be administered semi-yearly.
July 2017 Survey
December 2016 Survey
July 2016 Survey
The following survey was conducted by Research America to determine the factors that contribute to a lack of minority participation in clinical trials.
Sept 2017 Survey
For more information, contact Liz Martinez, Research Participant Advocate.
Any publication including mention of the use of the Instruments shall include appropriate reference to their origin or citation when available, and acknowledgement of grant number UL1 TR000043 as follows: “Supported in part by grant # UL1 TR000043 from the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health (NIH) Clinical and Translational Science Award (CTSA) program.”