Informatics

The Clinical Research Informatics Core concentrates on identifying gaps in current research IT services within the Johns Hopkins environment and creating strategies for filling these gaps. By using CTSA funds to leverage institutional resources to provide for these needs as identified by investigators and the committee, the entire research enterprise is benefiting through both the improvement of existing resources and the creation of new, enterprise-wide tools.

Researchers can:

  • Use the Qualtrics Survey Tool for Research
  • Create a Research Database with REDCap
  • Access EMR Data for Research including cohort discovery with the Center for Clinical Data Analysis (CCDA)
  • Leverage a Database to Support Research Billing and link to Epic with the Clinical Research Management System (CRMS)
  • Gain Professional Development and learn best practices from the Data Management Advisory Board
  • Contact the Epic Research Team for help with using Epic to Conduct Clinical Research
  • Search a Directory of Researchers at Johns Hopkins via PURE Elsevier (formerly SCIVAL/JHU Experts Research Profiles)
  • Request a platform for Secure Analysis of Data​ (SAFE– Secure Analytic Framework Environment)
  • Manage and Track Biospecimens  with OpenSpecimen 

Click the links below to learn more:

The Center for Clinical Data Analysis (CCDA) assists researchers with accessing clinical data for research purposes. Services include: Preliminary, anonymous data for feasibility, grant applications and statistical sample-size estimates IRB-approved case-finding–for study enrollment (mailings, phone ...

CRMS is a web-based tool designed to organize and streamline clinical research management. It is designed to improve communication among study team members, store subject enrollment information in a secure location, and run real-time reports. Accessible ...

Epic is the unified electronic medical record and primary clinical care system for Johns Hopkins.  Epic deployment for all of Johns Hopkins Medicine was completed in July 2016.  It is currently deployed at Johns Hopkins Hospital, Johns Hopkins ...

The Star Data Warehouse is an analytical healthcare database that brings together Epic and non-Epic data, such as patient satisfaction information, in one simplified reporting database to vastly improve query ease and efficiency of data ...

OpenSpecimen (formerly caTissue) is a bio-bank management tool used to collect, manage, process, annotate and distribute bio-specimens and associated data to selected users.  At Johns Hopkins, OpenSpecimen is currently being used in Gastroenterology, Cardiology and ...

Johns Hopkins has multiple IT policies regarding the protection of patient data. Diana Gumas, Senior Director for Clinical Research Information Technology, is responsible for working with the Johns Hopkins Medicine Data Trust, the Institutional Review ...

What is Qualtrics? Qualtrics is the world’s leading enterprise survey company, used by 1,300 colleges and universities worldwide, including every major university in the United States. Qualtrics makes it easy to create and distribute engaging surveys. Qualtrics ...

REDCap is a mature, secure web application for building and managing online surveys and databases. Using REDCap's stream-lined process for rapidly developing projects, you may create and design projects using the online method from your ...

SAFE, the Secure Analytic Framework Environment (formerly called the Secure Data Desktop/SDD) is a virtual desktop that provides Johns Hopkins Medicine investigators (whether engaged in research or other data-intensive activities) with a secure environment to ...