Self Service Tools

 

 SlicerDicerTriNetXACTLeaf (Precision Medicine)
PaTH CDM
Date Range
4/1/2013 to present (24 hour delay). See limitations.
9/1/2016 to present. Refreshed every two weeks.
1/1/2013. Refreshed every two weeks.
Varies. Ability to ingest Epic data as well as study-specific registries
1/1/2012. Refreshed quarterly.
Self-Service?
(Investigators Query the Data Directly)

PHI Available?
(with IRB approval and CCDA Assistance, Usually within 2 Free Hours)
Source System
Epic
EpicEpicEpic, Imaging database, study-specific registries
Epic
Source Institutions
All JHM sites except ACH
All JHM sites except ACH plus (list all TriNetX participating sites)
All JHM sites except ACH plus (list all ACT participating sites)
All JHM sites except ACH
All JHM sites except ACH plus (list all PCORI participating sites)

Best Use
Feasibility queries for internal use; returns "My Patients"; data exports for chart review if permissions allow; future use for data models and dashboarding
Internal queries; temporal relationships; lab results with thresholds; analytic features; cohort identification
Sharing query results between ACT sites; ability to view results from other ACT sites with IRB approval.
Data analytics on multiple data sets; Natural Language Processing (NLP), machine learning; access to data science tools for advanced analytics
PCORNet queries. The coordinating site (University of Pittsburgh) performs counts and queries on behalf of the network
Limitations/Caveats
No temporal relationships; data not always available for specified date range but not obviously indicated; many labs cannot be narrowed to a threshold. Note that not all data are available during that time range - depends on each site's go-live.
Limited to 3 years at this point. Only standards encoded data (ICD-10, CPT, RxNorm, LOINC)
Data not always available for specified date range but not obviously indicated; SHRINE interface is not as intuitive as SlicerDicer and TriNetX. Only standards encoded data (ICD-10, CPT, RxNorm, LOINC)
Fee required. Availability depends on data projection.
No surgical procedures, no access to query unless study team works through Pittsburgh. Only standards encoded data (ICD-10, CPT, RxNorm, LOINC)
Patients
XData not always available for specified date range but not obviously indicated; SHRINE interface is not as intuitive as SlicerDicer and TriNetX. Only standards encoded data (ICD-10, CPT, RxNorm, LOINC)
XXX
Encounters XXXX
Diagnoses


XXXXX
Meds XXXXX
Procedures XXXXX
Labs XXXXX
MyChart X
Histories XX
Immunizations
XXX
Research Study Status
XX
Vitals XX (some)XX (some)
Oncology Treatments X
Patient-Reported Outcomes
XXX (Epic and REDCap)
Notes