The ICTR Informatics Core provides multiple resources that investigators can use to get feasibility counts for inclusion in grants and other study preparatory activities.
Investigators with access to Epic can use Epic’s SlicerDicer to get rough patient counts. To find SlicerDicer in Epic, go to the Epic search bar and type in SlicerDicer. IRB approval is needed prior to using these data for recruitment or to conduct your research or publish.
Note that SlicerDicer has the following limitations:
– not all data in Epic are available for searching in SlicerDicer (most notably text data)
– patient data collected outside of the Johns Hopkins Epic system will not be available in SlicerDicer with the exception of some historical lab and encounter data.
To learn more about SlicerDicer visit http://slicerdicer.johnshopkins.edu/
TriNetX is a self-service tool launched broadly in January 2019. TriNetX has advanced analytic tools and a cleaner set of data then what is available in SlicerDicer. TriNetX is populated with data from Epic which have been cleaned, curated and more fully mapped to codes like LOINC to improve data quality and analysis. The date range of data in TriNetX is from July 2016 – present in order to reduce the problem of unexpected gaps in the data prior to the Johns Hopkins Medicine Epic enterprise go-live. Attend one of our training sessions to receive an account.
To learn more, visit: https://ictr.johnshopkins.edu/programs_resources/programs-resources/i2c/trinetx/
Accrural to Clinical Trials (ACT)
The ACT Network is a real-time platform allowing researchers to explore and validate feasibility for clinical studies across the NCATS Clinical and Translational Science Award (CTSA) consortium, from their desktops.
To learn more, visit: https://ictr.johnshopkins.edu/collaboration/collaborations/accrual-to-clinical-trials-act/
Core for Clinical Research Data Acquisition (CCDA)
When investigators have sophisticated inclusion and exclusion criteria that cannot be satisfied by using SlicerDicer or TriNetX, we recommend that they contact the CCDA for assistance. Investigators receive 2 initial hours of service subsidized by the ICTR, during which we are often able to complete simple feasibility queries. For more information, visit https://ictr.johnshopkins.edu/ccda