Register Now for Rare Disease Day at NIH Feb 28

Rare diseases affect an estimated 30 million Americans. On Feb. 28, 2019, NIH will host an event to raise awareness about these diseases, the people they affect and current research collaborations.

Sponsored by NCATS and the NIH Clinical Center (CC), Rare Disease Day at NIH will take place from 8:30 a.m. to 4 p.m. ET in the main auditorium of the Natcher Conference Center, Building 45 on the main campus in Bethesda, Maryland. Speakers include NIH Director Francis S. Collins, M.D., Ph.D.; NCATS Director Christopher P. Austin, M.D.; NIH CC CEO James K. Gilman, M.D.; and NCATS Office of Rare Diseases Research Director Anne R. Pariser, M.D.

The event will feature interactive panel discussions on collective research models for rare diseases, patient registries, rare cancer research initiatives, and “no disease left behind, no patient left behind.” New this year will be the presentation of the first ever Zebbie award for the NCATS Rare Diseases Are Not Rare! Challenge. Other highlights include posters and exhibits by rare disease groups and researchers as well as artwork, videos, networking opportunities and tours of the NIH CC. Admission is complimentary and open to the public.Prior to the event, on Feb. 22, 2019, NIH will host a Twitter chat on rare diseases from 1-2 p.m. ET. The chat will feature Collins, Austin and Gilman as well as representatives from the rare diseases advocacy community.

Join in the conversation using #NIHchat and follow @ncats_nih_gov.



View the Agenda

Learn more about Rare Disease Day at NIH.