Health Information Exchange Data Now Available to Johns Hopkins Researchers via the CRISP Research Initiative
Posted by: Crystal Williams on: March 27, 2019 | Print This Page
Thursday, March 14th well over 100 faculty, staff members and students gathered to learn about the health information exchange database CRISP. The Chesapeake Regional Information System for our Patients (CRISP) is a non-profit health information exchange that serves Maryland, the District of Columbia, Virginia and West Virginia; and is designated as Maryland’s statewide health information exchange by the Maryland Health Care Commission.
CRISP’s mission is to “enable and support the healthcare community of Maryland and our region to appropriately and securely share data in order to facilitate care, reduce costs and improve health outcomes.” Essentially, it electronically delivers the correct health information to the right place at the right time. CRISP alerts researchers if a consented research participant has been seen in an emergency room or been hospitalized anywhere in the state of Maryland (and in some surrounding areas.)
Christopher Chute, MD, DrPh, Bloomberg Distiguished Professor of Health Informatics, director of the ICTR Informatics Core (i2c) and chair of the CRISP Research Subcommittee, welcomed the crowd and expressed that CRISP took close to 3 years of making, building and gathering resources to leverage them to the benefit of the research community. Ross Martin, program director of the CRISP Initiative, explained that one of the first studies to use CRISP was JHU Alive. JHU Alive was a long standing study that followed patients for 20-30 years and was now able to access patient data in an efficient way.
To use the information, requests are first reviewed by a subcommittee. From there, it is sent to the clinical advisory board. All studies must be IRB approved. One of the benefits to researchers at Johns Hopkins is that the requested data can be accessed via an online portal and also delivered through the electronic health record EPIC.
The symposium gave an overview of a few research projects that utilized CRISP, including, UMMS-Friends NavStar; JHU Readmissions B’FRIEND Suicide Project; JHU Mesa; and JHU Walgreens.
CRISP currently receives admission, discharge, and transfer messages in real-time from:
• All 48 Maryland acute care hospitals
• 9 D.C. acute care hospitals
• 6 Delaware acute care hospitals
• 17 Virginia acute care hospitals
• 29 West Virginia acute care hospitals
• 1 Ohio acute care hospital
• Almost 2/3 of Long Term Care Sites in Maryland.
If you are a part of a study and would like to learn more about the database and how to submit a request for records, visit the links below.
Christopher Chute, MD, DrPH
Bloomberg Distinguished Professor of Health Informatics
Professor of Medicine, Public Health, and Nursing at Johns Hopkins University
Chair of the CRISP Research Subcommittee
Ross D. Martin, MD, MHA
Program Director, Research and Transformation
@RossMartin, @CRISPhealth on Twitter