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Register for Rare Disease Day at NIH Feb 28

February 28, 2019 @ 8:30 am - 4:00 pm

Rare diseases affect an estimated 30 million Americans.


Sponsored by NCATS and the NIH Clinical Center, Rare Disease Day at NIH will take place from 8:30 a.m. to 4:00 p.m. ET in the main auditorium of the Natcher Conference Center, Building 45 on the main campus in Bethesda, Maryland. Speakers include NCATS Director Christopher P. Austin, M.D.; NIH Clinical Center CEO James K. Gilman, M.D.; and NCATS Office of Rare Diseases Research Director Anne R. Pariser, M.D.

The event will feature interactive panel discussions on collective research models for rare diseases, patient registries, rare cancer research initiatives, and No Disease Left Behind, No Patient Left Behind. New this year will be the presentation of the first ever Zebbie award for the NCATS Rare Diseases are Not Rare! Challenge. Other highlights include posters and exhibits by rare disease groups and researchers as well as artwork, videos and tours of the NIH Clinical Center.


February 28, 2019
8:30 am - 4:00 pm


National Institutes of Health William H. Natcher Building (Building 45) Natcher Conference Center, Rooms E1/E2
45 Center Drive
Bethesda, MD 20892 United States