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NCATS Toolkit for Patient-Focused Therapy Development Meeting
September 8 @ 9:00 am - 4:00 pm
On Sept. 8, 2017, NCATS will launch a new, centralized online resource portal to help patient support organizations make progress along the entire translational science spectrum, no matter where they might be in that process. The NCATS Toolkit for Patient-Focused Therapy Development: Demonstration and Dissemination Meeting will take place 9 a.m. to 4 p.m. ET on the NIH campus in Bethesda, Maryland. Patients, their caregivers and patient-support organizational representatives are invited to attend to learn how the toolkit can help streamline the search for the right resources to help in their therapeutic development activities. Participants also will have the opportunity to provide input into how the toolkit can be expanded and made more useful.
Developed in collaboration with patients and rare disease advocates, these tools will cover the broad therapy development landscape, including:
- How to establish a patient registry;
- How to drive patient-focused discovery and pre-clinical research and development;
- How to work with NIH and the Food and Drug Administration; and
- How to conduct post-market surveillance.