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NCATS Day 2019 – Conversations on Responsible Data Sharing
December 17, 2019 @ 8:00 am - 5:00 pmFree
Join NCATS for a full day of thoughtful discussion, perspectives, and insights into data sharing in the translational science community at NCATS Day 2019 on Tuesday, December 17.
The collection and analysis of data is important for translating research results into new prevention strategies and treatments, that can improve human health. Sharing of scientific data helps validate research results, enables researchers to combine data types to strengthen analyses, facilitates reuse of hard to generate data or data from limited sources, and contributes to ideas for future research directions. Central to data sharing is the recognized need to make it as available as possible while ensuring the confidentiality and autonomy of research participants.
NCATS is committed to placing patients and their communities at the center of all our efforts and constantly looks for opportunities to include the patient perspective. At NCATS Day 2019 we will discuss data sharing from different viewpoints, including the research participant, community, researcher, federal funder, and industry. It is important to hear different perspectives and participate in a dialogue that includes stakeholders from diverse backgrounds.