BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Institute for Clinical and Translational Research - ECPv6.16.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Institute for Clinical and Translational Research
X-ORIGINAL-URL:https://ictr.johnshopkins.edu
X-WR-CALDESC:Events for Institute for Clinical and Translational Research
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250516T080000
DTEND;TZID=America/New_York:20250516T170000
DTSTAMP:20260605T081324
CREATED:20250516T175629Z
LAST-MODIFIED:20250516T175629Z
UID:51649-1747382400-1747414800@ictr.johnshopkins.edu
SUMMARY:Master Protocols for Rare Diseases
DESCRIPTION:NeuroNEXT 2025 Network-Linked Open Conference (NLOC)\nMaster Protocols for Rare Diseases: A Framework for Batten Disease \nThe Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT) is hosting a virtual one-day virtual conference on clinical trials and clinical trial methods. This year’s NLOC puts Master Protocol trial design front and center — exploring how adaptive\, multi-arm frameworks can transform therapeutic development for Batten diseases\, other rare diseases\, and beyond. \nWhat to expect:\n🔹 Biostatistical insights on Master Protocols\n🔹 Platform trial case studies (ALS\, neurofibromatosis)\n🔹 Advocacy and patient perspectives\n🔹 Updates on the Batten disease therapeutic pipeline \n🔹 Workshops to develop umbrella and basket trial approaches for Batten diseases \nWho should attend?\nResearchers\, rare disease communities\, rare disease clinicians\, pediatric neurologists\, geneticists\, trial design experts\, biostatisticians\, trainees\, research coordinators\, project managers\, industry partners — and anyone invested in advancing therapy development for neurological conditions.
URL:https://ictr.johnshopkins.edu/event/master-protocols-for-rare-diseases/
ATTACH;FMTTYPE=image/jpeg:https://ictr.johnshopkins.edu/wp-content/uploads/neuronext.jpg
END:VEVENT
END:VCALENDAR