Johns Hopkins Medicine is committed to helping the experience of being a research participant as positive as possible.
We can only do this if we give research participants the opportunity to rate their experience. Every six months since 2016, we identify a random sample of 500 research participants to receive a survey. In the survey, we ask about the informed consent process, interaction with the research team, and how easy it was to complete the study. We pledge to all of the people who completed the survey that the results will be posted for the public and patients to review. The results of all of the surveys are available through the links below.
*September 2017(Conducted by Research America to determine the factors that contribute to a lack of minority participation in clinical trials.)
This survey was adapted from Kost et al Clin Trans Sci 2014 Dec;7(6):430-40. Any publication including mention of the use of the Instruments shall include appropriate reference to their origin or citation when available, and acknowledgement of grant number UL1 TR000043 as follows: “Supported in part by grant # UL1 TR000043 from the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health (NIH) Clinical and Translational Science Award (CTSA) program.”
- What is your overall experience in a research study?
- Would you recommend joining a research study to your family and friends?
- What are your reasons for joining a study?
- Did the informed consent form prepare you for what to expect during the study?
- Did the information and discussions you had before participating in the research study prepare you for your experience in the study?
- How satisfied were you with the research team?
- How satisfied were you with research process?
- What things that would be important for participants in a future study?