Data Managers Interest Group Presentations Archive

November 4, 2021
The BEAD Core
Jacky Jennings, PhD, MPH

September 25, 2020
Has the COVID Pandemic Changed Clinical Research?
Dr. Daniel Ford

Electronic Health Record Data in the Time of COVID: The National COVID Cohort Collaborative (N3C)
Dr. Christopher Chute

December 1, 2017
Data Managers Interest Group Panel on De-identified and Limited Datasets
Kathryn Carson, David Fearon, David Shade

July 14, 2017
Data Managers Interest Group panel on Data Management Planning
David Fearon, Robert Lawrence Findling, Todd Nesson, Joan Pettit, David R. Thiemann, Gayle Walters

May 23, 2017
The Promise and Taming of Big Data: Potential Contributions of ICD11
Christopher G. Chute

March 28, 2017
SlicerDicer, REDCap update, Safe Data Desktop
Diana Gumas, Bonnie Woods, Scott Carey

November 30, 2016
Data Security Update
Darren Lacey

September 28, 2016
REDCap Update
Andre Hackman

June- August 2016
Summer Recess

May 31, 2016
Welch Medical Library Data Management Services and Resources
Jennifer Darragh

May 3, 2016
The Joint High Performance Computing Exchange
Fernando Pineda

Johns Hopkins and Community Physicians (JHCP) Research, Education and Performance Improvement Review Process
Todd Nesson

Update on Funder Data Management/Data Sharing Plans
Dave Fearon

March 30, 2016
Qualtrics Survey Platform
Richard Zhu

February 25, 2016
Data Security Post JH Data Breach: New Things You Should Know
Diana Gumas and Darren Lacey

December 2015
Winter Recess

November 17, 2015
“Data Use Agreements” (No video or slides)
Jennifer Kulynych

October 29, 2015
Johns Hopkins Medicine Technology Innovation Center
Gorkem Sevinc, Michael Cohen and Jasmine Touton

September 22, 2015 – Special Fall Kick-Off Meeting
Mobile/Digital Data Security @JHU Round Table Discussion
Alain Labrique, Joan Pettit, Darren Lacey, Jennifer Kulynych, Gorkem Sevinc

July & August, 2015
Summer Recess

June 10, 2015
Secure Desktop
Stuart Ray

May 12, 2015
i2b2 Updates
Diana Gumas

April 14, 2015
Slide Set 1 & Slide Set 2
Susan Booker and Jessica Wakefield

March 24, 2014
Johns Hopkins Box – JHBox
Brian Schisler

February 24, 2015
REDCap Update
Andre Hackman

January 28, 2015
Best Practices for Preparing Your Data for Analysis:  Tips for Data Quality and Cost-effectiveness
Jeannie Leoutsakos and Carol Thompson

December, 2015
Winter Recess

November 18, 2014
JHM Data Trust Council Research Data Sub-Council (RDSC) Data Security and Access Standards Recommendations
Video and Slides
Stuart Ray

October 28, 2014
Summaries from the September 5, 2014 breakout sessions and future direction; followed by breakouts for Data Management Planning; Data Sharing and Archiving; and Data Backup and Security
Kelly Crowley, Scott Carey, Betsy Gunia and Sharon Ghazarian

September 5, 2014
Special extended best practice-focused meeting with breakout groups for Data Management Planning; Data Sharing and Archiving; and Data Backup and Security.

August 2014: Summer Recess

July 29, 2014
Ethical Principles Related to Data Protection and Integrity (Powerpoint)
Mark Hughes

June 26, 2014
Data Security Moving Forward (Powerpoint and Video)
Darren Lacey

May 22, 2014
Epic for Research

The Cogito Data Warehouse

Pretention Webcast
Diana Gumas

April 24,  2014
De-identifying Human Subject Data for Sharing Your Research Handout
Dave Fearon

March 25, 2014
Best Practices Panel Discussion (minutes)

February 27, 2014
GIS and Sheridan Library Services
Bonni Wittstadt

December 2013 and January 2014: Winter Recess

November 26, 2013
Spatial Analysis
Tim Shields and Frank Curriero

October 23, 2013
Secure (Research) Data Desktop
Stuart Ray

September 19, 2013
Data Integrity Panel Discussion
Scott Carey, Jeannie Leoutsakos, and Kerry Stewart

June 18, 2013
I2B2 Update
Chris Shafer

May 14, 2013
Translational Research Enhancement Core: Patient Registry, Clinical Info Systems and Tissue Repository
Jim Potter

April 16, 2013
Technology Trends at Johns Hopkins
Mike McCarty

March 19, 2013
*Presentation not available*
Sean Fahey

February 19, 2013
Andre Hackman

January 15, 2013
De-identification Koans
Darren Lacey

December 11, 2012
The Lab Bench for Mobile Health
Henry Li, Michael Lin and Ralph Passarella

November 13, 2012
Johns Hopkins University Data Management Services
Dave Fearon, Tim DiLauro, and Betsy Gunia

October 9, 2012
An Introduction to Medicare and SEER-Medicare Data
Jodi Segal, MD, MPH

September 13, 2012
Research Architecture: Values, Aspirations & Challenges
Chris Shafer

June 28, 2012
*Presentation not available*
Epic Update
Rob Richardson, Timothy Morgan and Mark Inge

May 7, 2012
*Presentation not available*
Using Medical Imaging Data for Research at Hopkins
Jim Philbin, PhD

April 17, 2012
Data Security and Steps You Can Take to Protect Your Data
Darren Lacey

March 13, 2012
Excitement, Panic and Genomic Data
Sarah Wheelan, MD, PhD

February, 17, 2012
Enhancing Johns Hopkins Research Data Quality: Prioritizing the Steps Forward
Scott Zeger, PhD

January 24, 2012
Working with Your Statistician: How We Can Make Each Others’ Jobs Easier
Jeannie-Marie Leoutsakos, PhD, MHS

December 12, 2011
*Presentation not available*
Panel Discussion about EPIC Development and Data Standards
Diana Gumas, Alan Coltri, MS, and Peter Greene, MD

November 16, 2011
REDCap Handout
Andre Hackman
Faculty Research Associate, Biostatistics Center

October 10, 2011
*Presentation not available*
Darren Lacey
Chief Information Security Officer

September 13, 2011
Clinical Research Data & System Strategy Session

Clinical Research Management System (CRMS) IT Overview

Using EPR2020 for Clinical Research
Diana Gumas
Director of Clinical and Clinical Research IT

April 15, 2011
PI Summary Results
Daniel Ford, MD, MPH
Vice Dean for Clinical Investigation and Director, Institute for Clinical and Translational Research

Data Manager’s Survey Results


Scott Carey
Research Informatics Manager, ICTR

Kerry Stewart, Ed.D., FAHA, FAACVPR, FACSM, FSGC
Professor, Medicine and Director, Clinical and Research Exercise Physiology &