Category Archive: Child of Participant Recr. Support

Research Participant Satisfaction Survey


Johns Hopkins Medicine is committed to helping the experience of being a research participant as positive as possible. We can only do this if we give research participants the opportunity to rate their experience. Every six months since 2016, we identify a random sample of 500 research participants to receive a survey. In the survey, we ask about the informed consent process, interaction with the research team, and how easy it was to complete the study. We pledge to all of the people who completed the survey that the results will be posted for the public and patients to review. […]

MyChart Recruitment


Through Epic, we now have the ability to invite patients to studies using MyChart. Inviting patients to participate in research studies through MyChart is a new recruitment approach. In an effort to reduce unnecessary communication, the messages are targeted to patients who may be interested and eligible for studies. The use of MyChart for recruitment requires IRB approval, and extensive care is taken to protect patient privacy. To safeguard patient privacy, PIs and research teams will not be able to see PHI. Patients can always opt out of receiving future invitations through MyChart.  A patient may either email us at […]

Events and Workshops for Researchers


To see event summaries from other related workshops, please visit our news feed. Advancing Research in the Digital Age February 27, 2018 This conference focused on building institutional knowledge around research consenting, recruiting and data collection in the informatics age. The goal is to help Johns Hopkins researchers learn what digital technologies are available and how to utilize these tools in human subject research. Agenda Webcast Presentations   Nuts & Bolts of Community Engagement in Research Workshop   December 1, 2017 This event was hosted by the ICTR in collaboration with the University of Maryland and Morgan State University.  A diverse […]

Cohort Retention


Improving Long Term Outcomes Research- This NIH-funded “national infrastructure” grant (R24HL111895), aims to provide resources for longitudinal clinical research studies. The following resources are freely available from the project’s website https://improveLTO.com: Database of common surveys and tests for evaluating physical, cognitive, mental health, and quality of life outcomes, and standardized information about these measures. http://www.improvelto.com/instruments/ Adaptable tools, templates, and manuals to maximize cohort retention (including an interactive searchable database with >600 retention strategies abstracted from a systematic review). http://www.improvelto.com/cohort-retention-tools A standalone statistical application to address “truncation due to death” when evaluating functional outcomes. http://www.improvelto.com/stats-tools/ For additional information, view the webinar […]

Truven Health MarketScan® Research Databases


The Truven Health MarketScan® Research Databases capture person-specific clinical utilization, expenditures, and enrollment across inpatient, outpatient, prescription drug, and carve-out services. The data comes from a selection of large employers, health plans, and government and public organizations. The MarketScan Research Databases link paid claims and encounter data to detailed patient information across sites and types of providers and over time. The annual medical databases include private-sector health data from approximately 100 payers. Historically, more than 500 million claim records are available in the MarketScan databases. These databases represent the medical experience of insured employees and their dependents for active employees, […]

Participant Recruitment Resources


Budgeting Johns Hopkins Medicine: Office of Research Administration Community Engagement Community Engagement Program Johns Hopkins Center for Excellence in Latino Health Johns Hopkins Office of Community Health Johns Hopkins Urban Health Institute List of Community Organizations Partnering with Hopkins Ethics and Regulatory Issues Research Ethics Consult Research Participant Advocates: Consultant Service Institutional Review Board Marketing Johns Hopkins Medicine: Marketing and Communications Media, Marketing, & Communications at Johns Hopkins Bayview Recruitment Recruitment Consultation & Coaching Research Centers Johns Hopkins Research Centers (by population or health topic) Research Coordinators Research Coordinator Support Service Trial Innovation Center Recruitment Innovation Center Recruitment and Retention […]

Training Video Library


These training videos address common recruitment challenges. Research teams are encouraged to use the information to enhance their recruitment efforts. Note: Some of the materials require a JHED identification to access. Recently Added Building Trust, Engaging Communities & Disseminating Results Measuring the Impact of Recruitment Efforts Electronic Recruitment Methods Digital Recruitment Practical Guidance on the Use of Social Media for Recruitment Community-Engaged Recruitment Innovative Tools to Reach Participants Budgeting Budgeting for Recruitment  Communication Skill Building Communication Skills to Enhance Recruitment, Part 1 Communication Skills to Enhance Recruitment, Part 2 Communication Skills as a Recruitment Tool Community Engagement Community-Engaged Recruitment Community-Clinician […]

Community Collaboration Core


We engage community partners, stakeholders, and researchers to co-design, implement, evaluate and disseminate clinical and translational research. Our goal is to improve community health by ensuring that research is culturally appropriate, valued, efficient and effective.   Community Partnership and Collaboration Core Pilot Grants Community Partnership and Collaboration Core Pilot Grants are designed to build and support community engaged research (CEnR) partnerships through relationship building activities, exploring research interests and developing infrastructure and governance for research partnerships. Any faculty member from Johns Hopkins University, the University of Maryland Baltimore or Morgan State University is eligible to apply. Junior faculty, particularly those […]