Category Archive: Child of Participant Recr. Support

Research Participant Satisfaction Survey


In July 2016, the Johns Hopkins Institute for Clinical and Translational Research randomly selected 500 participants from the Clinical Research Management Services list to receive a survey by email if they were involved in a research study at Johns Hopkins within the last 6 months. The survey, adapted from Kost et al Clin Trans Sci 2014 Dec;7(6):430-40, asked a variety questions including why it is important for them to join a study and to rate the care they received from the research team. The response rate was 34%. This survey will be administered semi-yearly. Survey Results January 2018 Sept 2017 Survey  (Conducted by … Continue reading

My Chart/Epic Based Recruitment


Through Epic, we now have the ability to invite patients to studies using MyChart. Inviting patients to participate in research studies through MyChart is a new recruitment approach. In an effort to reduce unnecessary communication, the messages are targeted to patients who may be interested and eligible for studies.  The use of MyChart for recruitment requires IRB approval, and extensive care is taken to protect patient privacy. To safeguard patient privacy, PIs and research teams will not be able to see PHI. Patients can always opt out of receiving future invitations through MyChart.  A patient may either email us at … Continue reading

Events and Workshops for Researchers


Advancing Research in the Digital Age February 27, 2018 This conference focused on building institutional knowledge around research consenting, recruiting and data collection in the informatics age. The goal is to help Johns Hopkins researchers learn what digital technologies are available and how to utilize these tools in human subject research. Agenda Webcast Presentations   Nuts & Bolts of Community Engagement in Research Workshop   December 1, 2017 This event was hosted by the ICTR in collaboration with the University of Maryland and Morgan State University.  A diverse group of patients, community board members, research participants, study team members, and students … Continue reading

Chesapeake Regional Information System for our Patients (CRISP) Database


Chesapeake Regional Information System for our Patients (CRISP) CRISP is a regional health information exchange (HIE) serving Maryland and the District of Columbia. This a non-profit organization is advised by a wide range of stakeholders who are responsible for healthcare throughout the region. CRISP has been formally designated as Maryland’s statewide health information exchange by the Maryland Health Care Commission. Health information exchange allows clinical information to move electronically among disparate health information systems. The goal of the HIE is to deliver the right health information to the right place at the right time – providing safer, timelier, efficient, effective, … Continue reading

Truven Health MarketScan® Research Databases


The Truven Health MarketScan® Research Databases capture person-specific clinical utilization, expenditures, and enrollment across inpatient, outpatient, prescription drug, and carve-out services. The data comes from a selection of large employers, health plans, and government and public organizations. The MarketScan Research Databases link paid claims and encounter data to detailed patient information across sites and types of providers and over time. The annual medical databases include private-sector health data from approximately 100 payers. Historically, more than 500 million claim records are available in the MarketScan databases. These databases represent the medical experience of insured employees and their dependents for active employees, … Continue reading

Participant Recruitment Resources


The following programs offer participant recruitment resources: Budgeting Johns Hopkins Medicine: Office of Research Administration Community Engagement Community Engagement Program Johns Hopkins Center for Excellence in Latino Health Johns Hopkins Office of Community Health Johns Hopkins Urban Health Institute List of Community Organizations Partnering with Hopkins Ethics and Regulatory Issues Research Ethics Consult Research Participant Advocates: Consultant Service Institutional Review Board Marketing Johns Hopkins Medicine: Marketing and Communications Media, Marketing, & Communications at Johns Hopkins Bayview Recruitment Recruitment Consultation & Coaching Research Centers Johns Hopkins Research Centers (by population or health topic) Research Coordinators Research Coordinator Support Service Trial Innovation … Continue reading

Training Video Library


The Participant Recruitment and Retention Program has compiled training videos that address common recruitment challenges. Research teams are encouraged to use the information to enhance their recruitment efforts. Note: Some of the materials require a JHED identification to access. Recently Added Talks Building Trust, Engaging Communities & Disseminating Results Measuring the Impact of Recruitment Efforts Electronic Recruitment Methods Digital Recruitment Practical Guidance on the Use of Social Media for Recruitment Community-Engaged Recruitment Innovative Tools to Reach Participants Prior Trainings Budgeting Budgeting for Recruitment  Communication Skill Building Communication Skills to Enhance Recruitment, Part 1 Communication Skills to Enhance Recruitment, Part 2 … Continue reading

Community & Stakeholder Engagement


The Community Engagement Program of the Johns Hopkins Institute for Clinical and Translational Research aims to bring researchers, diverse communities, and stakeholders together to share their knowledge, skills and resources with a common goal of improving community health. Community Engaged Research Training We offer introductory and advanced training in community engaged research.  Training topics include:  Planning and evaluating community engagement in research; disseminating research findings to the public; building and sustaining research partnerships. All training is delivered by Johns Hopkins faculty and staff in collaboration with the Community Research Advisory Council. The council includes academic researchers, health care professionals and … Continue reading