Category Archive: Child of Participant Recr. Support

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Research Participant Satisfaction Survey


Johns Hopkins Medicine is committed to helping the experience of being a research participant as positive as possible. We can only do this if we give research participants the opportunity to rate their experience. Every six months since 2016, we identify a random sample of 500 research participants to receive a survey. In the survey, we ask about the informed consent process, interaction with the research team, and how easy it was to complete the study. We pledge to all of the people who completed the survey that the results will be posted for the public and patients to review. … Continue reading

MyChart Recruitment


Introduction The MyChart Recruitment Service is a collaboration between data analysts, experts in recruitment methods, and clinical researchers that offers a secure method of electronically recruiting potential research participants. Target populations are identified and reached through database queries that are embedded in Epic. Potential participants are messaged via their activated Johns Hopkins MyChart account. Team members at the Recruitment Innovation Unit (RIU) within The Institute for Clinical and Translational Research (ICTR) work together to manage this service. Our goal is to support ongoing research at Johns Hopkins, while also empowering and engaging patients by connecting them with clinical research studies … Continue reading

Cohort Retention


Improving Long Term Outcomes Research- This NIH-funded “national infrastructure” grant (R24HL111895), aims to provide resources for longitudinal clinical research studies. The following resources are freely available from the project’s website https://improveLTO.com: Database of common surveys and tests for evaluating physical, cognitive, mental health, and quality of life outcomes, and standardized information about these measures. http://www.improvelto.com/instruments/ Adaptable tools, templates, and manuals to maximize cohort retention (including an interactive searchable database with >600 retention strategies abstracted from a systematic review). http://www.improvelto.com/cohort-retention-tools A standalone statistical application to address “truncation due to death” when evaluating functional outcomes. http://www.improvelto.com/stats-tools/ For additional information, view the webinar … Continue reading

Participant Recruitment Resources


Budgeting Johns Hopkins Medicine: Office of Research Administration Community Engagement Community Engagement Program Johns Hopkins Center for Excellence in Latino Health Johns Hopkins Office of Community Health Johns Hopkins Urban Health Institute List of Community Organizations Partnering with Hopkins Ethics and Regulatory Issues Research Ethics Consult Research Participant Advocates: Consultant Service Institutional Review Board Marketing Johns Hopkins Medicine: Marketing and Communications Media, Marketing, & Communications at Johns Hopkins Bayview Recruitment Recruitment Consultation & Coaching Research Centers Johns Hopkins Research Centers (by population or health topic) Research Coordinators Research Coordinator Support Service Trial Innovation Center Recruitment Innovation Center Recruitment and Retention … Continue reading

Community Collaboration Core | Support for Researchers


We engage community partners, stakeholders, and researchers to co-design, implement, evaluate and disseminate clinical and translational research. Our goal is to improve community health by ensuring that research is culturally appropriate, valued, efficient and effective.   HOPE Registry for COVID-19 Clinical Research Community Engagement Consultations Community Partnership and Collaboration Core Pilot Grants Team Science Awards