Category Archive: Child of Community

The Henrietta Lacks Memorial Lecture


The Johns Hopkins ICTR is privileged to be the establishing sponsor of the Henrietta Lacks Memorial Lecture Series. The goal of the series is to honor Henrietta Lacks and the positive global impact of HeLa cells. This series will also serve as an annual reminder of the gratitude, respect, and clear communication due to all research participants. Keeping biomedical research connected to the people it is intended to serve is an ongoing process rooted in the open exchange of ideas among all stakeholders. To facilitate this process, speakers for the Henrietta Lacks Memorial Lecture Series are selected for their ability to … Continue reading

Research Participant Advocate


Research Participant Advocate The RPA serves as a resource to volunteers. Contact us for an independent witness to the consent process, to serve on the volunteers behalf in the case of a misunderstanding between the volunteer and study team, or to provide information about research in general or a specific protocol. The Research Participant Advocacy Office provides consulting expertise on human subjects and regulatory issues, including IRB applications, the informed consent process, study feasibility and good clinical practice (GCP). Contact us for quick expert help. The RPA reviews applications to the Clinical Research Unit to assure high standards for Human … Continue reading

MyChart Recruitment Messages


Johns Hopkins Medicine is committed to supporting the discovery of new ways to improve the care and outcomes for patients.  Patients throughout the Johns Hopkins Health System have access to a network of clinical research studies for many different conditions.  In November 2016, the Johns Hopkins Research Participant Recruitment and Retention Program piloted a program to inform patients of research studies through automated My Chart Recruitment Messages.  Our goal is to empower patients by connecting them with clinical research studies that may be of interest to them. In a recent survey, we assessed what patients think about MyChart research invitations; … Continue reading

Community Research Advisory Council


The Community Research Advisory Council creates a forum for patients and diverse stakeholders to help shape research conducted at Johns Hopkins. Continue reading

Become a Research Participant


Institution Review Boards Johns Hopkins researchers partner with groups throughout the state and the nation to conduct many different kinds of health research studies, including clinical trials. Studies may involve participants with specific health conditions as well as healthy volunteers. If you are considering participating in a study, it may be helpful to view the video below to learn about the Institutional Review Board (IRB).  The IRB oversees all human subject clinical research studies performed at our institute to ensure that they are done ethically and safely.   Finding a Study Many people might consider participating in research but do … Continue reading