Category Archive: 2017 Programs and Resources

Clinical Research Units (CRUs)

The Clinical Research Units (CRUs) provide resources at 3 locations throughout the medical campuses–Johns Hopkins Hospital, the Charlotte R. Bloomberg Children’s Center and the 301 Building on the Johns Hopkins Bayview Medical campus. The CRUs are the safest, most efficient way to perform clinical and translational research and offer an indispensable resource that is widely used and required by our NIH funded investigators. Through protocol review, investigator mentoring, trained nursing staff, protocols performed on the CRUs are planned, vetted, monitored and performed under a similar safety standard to clinical care. All protocols are reviewed for scientific rigor, appropriateness of resources … Continue reading

Biostatistics Core

All Clinical Research Unit protocols are reviewed by a member of the Biostatistics Core prior to approval.   Discussing your project with a member of our staff is strongly encouraged for all investigators who do not already have biostatistical support as part of their funded protocols.   Complimentary Consultation In conjunction with the Biostatistics Center, ICTR offers researchers access to a research-related consulting service. The goal of the service is to promote the appropriate use of biostatistics in the design, implementation, and interpretation of clinical and translational research studies. JHU faculty with primary appointments can receive a maximum of 5 … Continue reading

Recruitment Innovation Unit

We offer investigators and research teams training, consultations and a toolkit of evidence-based, field-tested recruitment practices. Services have been developed and offered in collaboration with experts in information technology, ethics, and patient and community-engagement. Each year, workshops, hands on seminars, and customized support are provided to help researchers achieve their recruitment goals. This includes a broad range of federally funded, multi-site clinical trials and research programs funded by patient and community organizations. New! Integrating Special Populations into Research Program (ISP) Cohort Retention Resources Translation Services MyChart/Epic Based RecruitmentHOPE Registry for ResearchersRecruitment Innovation Unit Consult ServiceResearch Participant Satisfaction SurveysRecruitment Innovation Unit Handout

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Core for Clinical Research Data Acquisition (CCDA)

The Core for Clinical Research Data Acquisition (CCDA) assists researchers with accessing clinical data for research purposes. The CCDA is staffed with experienced data analysts who will assist you with access to data while also helping you comply with Data Trust privacy and security regulations. Contact Us Who is the CCDA? The Core for Clinical Research Data Acquisition (CCDA) is one of the 10 Data Trust analytic teams responsible for assisting researchers with accessing clinical data for research. Additionally, we are one of the clinical research informatics cores under the Institute for Clinical and Translational Research. What Services Are Provided? Preliminary, anonymous data … Continue reading

ICTR Informatics Core (i2c)

The ICTR Informatics Core provides an integrated set of tools and services to help clinical researchers with their data needs.   Explore the links below to view frequently requested services or click the Contact Us button to get in touch with one of our staff.   Analyze data using Natural Language Processing. Manage your specimens with OpenSpecimen. Learn about the National COVID Cohort Collaborative (N3C) Data Enclave. Need data for COVID-19 research? Learn about the CADRE Committee. COVID-19 Epic Resources, Research Specific Tip Sheets, and Research Home Dashboard Updates. Get feasibility counts for your grant or the IRB. Gather data … Continue reading

Program to Accelerate Clinical Research Using EPIC (PACE)

PACE was established to help clinical researchers take full advantage of tools within the EPIC Electronic Health Record system for their research projects. We design and build customized EPIC content for your project to enhance the efficiency and standardization of the data collection process and improve data quality.   Intro to PACE PACE Handout PACE at Hopkins (pptx, JHED login required) PACE in a Nutshell (video, JHED login required) Potential Applications Tools that help providers to collect discrete data on a population of interest (such as longitudinal studies). This may include documentation flowsheets and SmartForms as well SmartSets that help … Continue reading

Advancing Research in the Digital Age Presentations

Panel: Promoting Ethical Practices in Digital Research Clinical Natural Language Processing: Unlocking Patient Records for Research Megan Singleton, JD. MBE, CIP Stuart C. Ray, MD Joseph Ali, JD Mark Dredze, PhD Panel: Research Participant Recruitment Messaging Via MyChart Patient Portal Cheryl Dennison Himmelfarb, PhD, RN, ANP Kelly Gleason, PhD(c), RN, BSN Integration of Knowledge and Data from Science to Clinical Practice Christopher Chute, MD, DrPH, MPH Panel: Using Social Media to Engage Research Participants Wendy Bennett, MD, MPH Courtney Erdly Panel: Digital Consent and Data Collection Successful Strategies and Pitfalls Liz Martinez, RN, BSN, CCRC Observational Studies Using EHRs David … Continue reading

Research Participant Satisfaction Survey

Johns Hopkins Medicine is committed to helping the experience of being a research participant as positive as possible. We can only do this if we give research participants the opportunity to rate their experience. Every six months since 2016, we identify a random sample of 500 research participants to receive a survey. In the survey, we ask about the informed consent process, interaction with the research team, and how easy it was to complete the study. We pledge to all of the people who completed the survey that the results will be posted for the public and patients to review. … Continue reading

MyChart Recruitment

Introduction The MyChart Recruitment Service is a collaboration between data analysts, experts in recruitment methods, and clinical researchers that offers a secure method of electronically recruiting potential research participants. Target populations are identified and reached through database queries that are embedded in Epic. Potential participants are messaged via their activated Johns Hopkins MyChart account. Team members at the Recruitment Innovation Unit (RIU) within The Institute for Clinical and Translational Research (ICTR) work together to manage this service. Our goal is to support ongoing research at Johns Hopkins, while also empowering and engaging patients by connecting them with clinical research studies … Continue reading

PURE Elsevier (formerly SCIVAL/JHU Experts Research Profiles)

This research tool (which uses the Elsevier PURE model) allows JHMI faculty to identify biomedical experts and their publications by areas of expertise. Designed to facilitate faculty research and project collaboration, the information is based on the published output indexed in the PubMed database. To view the site visit If the answer to any of the questions below is yes, this database can likely help you: Do you need to put together multidisciplinary teams to tackle translational and big-science research projects? Could you use help to keep up with the constant influx of new faculty who might be working in an … Continue reading