Category Archive: 2017 Programs and Resources

ICTR Informatics Core (i2c)

The ICTR Informatics Core provides an integrated set of tools and services to help clinical researchers with their data needs. Explore the links to frequently requested services, join us at an upcoming Virtual Walk-In Clinic, or click the Contact Us button to get in touch with one of our staff. Get feasibility counts for your grant or the IRB Gather data using Epic, REDCap, or Qualtrics COVID-19 Epic Resources, Research Specific Tip Sheets, and Research Home Dashboard Updates Extract data for research use Find tools for research participant recruitment Learn more about Precision Medicine for research Manage your specimens with […]

Program to Accelerate Clinical Research Using EPIC (PACE)

PACE was established to help clinical researchers take full advantage of tools within the EPIC Electronic Health Record system for their research projects. We design and build customized EPIC content for your project to enhance the efficiency and standardization of the data collection process and improve data quality. Potential Applications Tools that help providers to collect discrete data on a population of interest (such as longitudinal studies). This may include documentation flowsheets and SmartForms as well SmartSets that help populate Epic data fields in a standardized way. It may also include automatic calculation of patient scores. Tools that allow collection […]

Advancing Research in the Digital Age Presentations

Panel: Promoting Ethical Practices in Digital Research Clinical Natural Language Processing: Unlocking Patient Records for Research Megan Singleton, JD. MBE, CIP Stuart C. Ray, MD Joseph Ali, JD Mark Dredze, PhD Panel: Research Participant Recruitment Messaging Via MyChart Patient Portal Cheryl Dennison Himmelfarb, PhD, RN, ANP Kelly Gleason, PhD(c), RN, BSN Integration of Knowledge and Data from Science to Clinical Practice Christopher Chute, MD, DrPH, MPH Panel: Using Social Media to Engage Research Participants Wendy Bennett, MD, MPH Courtney Erdly Panel: Digital Consent and Data Collection Successful Strategies and Pitfalls Liz Martinez, RN, BSN, CCRC Observational Studies Using EHRs David […]

Research Participant Satisfaction Survey

Johns Hopkins Medicine is committed to helping the experience of being a research participant as positive as possible. We can only do this if we give research participants the opportunity to rate their experience. Every six months since 2016, we identify a random sample of 500 research participants to receive a survey. In the survey, we ask about the informed consent process, interaction with the research team, and how easy it was to complete the study. We pledge to all of the people who completed the survey that the results will be posted for the public and patients to review. […]

MyChart Recruitment

Through Epic, we now have the ability to invite patients to studies using MyChart. Inviting patients to participate in research studies through MyChart is a new recruitment approach. In an effort to reduce unnecessary communication, the messages are targeted to patients who may be interested and eligible for studies. The use of MyChart for recruitment requires IRB approval, and extensive care is taken to protect patient privacy. To safeguard patient privacy, PIs and research teams will not be able to see PHI. Patients can always opt out of receiving future invitations through MyChart.  A patient may either email us at […]

PURE Elsevier (formerly SCIVAL/JHU Experts Research Profiles)

This research tool (which uses the Elsevier PURE model) allows JHMI faculty to identify biomedical experts and their publications by areas of expertise. Designed to facilitate faculty research and project collaboration, the information is based on the published output indexed in the PubMed database. To view the site visit If the answer to any of the questions below is yes, this database can likely help you: Do you need to put together multidisciplinary teams to tackle translational and big-science research projects? Could you use help to keep up with the constant influx of new faculty who might be working in an […]

Contact Us

JohnsHopkinsU (SOM, SON)– Anthony Keyes, Nidhi Atri, Prince Nuamah Oncology (SKCCC)– Monica Owens ( JHSPH– Miye Schakne ( Kennedy Krieger Institute – Elaine Stashinko ( All Children’s Hospital – Jan Wencel (

Events and Workshops for Researchers

To see event summaries from other related workshops, please visit our news feed. Advancing Research in the Digital Age February 27, 2018 This conference focused on building institutional knowledge around research consenting, recruiting and data collection in the informatics age. The goal is to help Johns Hopkins researchers learn what digital technologies are available and how to utilize these tools in human subject research. Agenda Webcast Presentations   Nuts & Bolts of Community Engagement in Research Workshop   December 1, 2017 This event was hosted by the ICTR in collaboration with the University of Maryland and Morgan State University.  A diverse […]

2017 Henrietta Lacks High School Day

Recruitment Conference 2016 Presentations

Breakout Sessions Building Trust & Engaging Participants in the Entire Research Process Ken Getz Measuring the Impact of Recruitment Efforts (pdf) Rhonda G. Kost Digital Approaches that Work Jennifer Creasman Use of Mobile Devices to Engage Research Participants Jason Kadrmas Melissa Mueller Practical Guidance on the Use of Social Media for Recruitment Appendix A & B Luke Gelinas Creating Authentic Community-Academic Partnerships in Clinical Research:  Chicago Area Patient Centered Outcomes Research Network’s Patient and Clinician Advisory Committee (PCAC) Doriane C. Miller Recruitment and Retention Wrap Up Lee Bone Janice Bowie From Clinical Trial Research to Reality: Recruitment, Retention, and Community-Engaged Research Sherrie […]

Cohort Retention

Improving Long Term Outcomes Research- This NIH-funded “national infrastructure” grant (R24HL111895), aims to provide resources for longitudinal clinical research studies. The following resources are freely available from the project’s website Database of common surveys and tests for evaluating physical, cognitive, mental health, and quality of life outcomes, and standardized information about these measures. Adaptable tools, templates, and manuals to maximize cohort retention (including an interactive searchable database with >600 retention strategies abstracted from a systematic review). A standalone statistical application to address “truncation due to death” when evaluating functional outcomes. For additional information, view the webinar […]