Category Archive: 2017 Programs and Resources

Neurological and Behavioral Sciences


Advances in the neurological and behavioral sciences continue to offer unprecedented opportunities to better understand and treat disorders of the central nervous system. The goal of the Neurobehavioral Research Unit (NBRU), located on the Broadway (main medical) campus of the Kennedy Krieger Institute (KKI), is to support research focused on typical and atypical development of the central nervous system, as well as conditions affecting central nervous system functioning throughout the lifespan. Capabilities include neuroimaging, neurogenetic analysis, and neurobehavioral assessment, all of which complement the other vast resources of Hopkins Medicine.NBRU resources are organized into the following components: Brain Research Neurobehavioral Research Neurogenetic … Continue reading

Program to Accelerate Clinical Research Using EPIC (PACE)


PACE was established to help clinical researchers take full advantage of tools within the EPIC Electronic Health Record system for their research projects. We design and build customized EPIC content for your project to enhance the efficiency and standardization of the data collection process and improve data quality. Potential applications of customized EPIC build are numerous, some typical scenarios include: Tools that help providers to collect discrete data on a population of interest (such as longitudinal studies). This may include documentation flowsheets and SmartForms as well SmartSets that help populate Epic data fields in a standardized way. It may also … Continue reading

Advancing Research in the Digital Age Presentations


Panel: Promoting Ethical Practices in Digital Research Clinical Natural Language Processing: Unlocking Patient Records for Research Megan Singleton, JD. MBE, CIP Stuart C. Ray, MD Joseph Ali, JD Mark Dredze, PhD Panel: Research Participant Recruitment Messaging Via MyChart Patient Portal Cheryl Dennison Himmelfarb, PhD, RN, ANP Kelly Gleason, PhD(c), RN, BSN Integration of Knowledge and Data from Science to Clinical Practice Christopher Chute, MD, DrPH, MPH Panel: Using Social Media to Engage Research Participants Wendy Bennett, MD, MPH Courtney Erdly Panel: Digital Consent and Data Collection Successful Strategies and Pitfalls Liz Martinez, RN, BSN, CCRC Observational Studies Using EHRs David … Continue reading

Research Participant Satisfaction Survey


In July 2016, the Johns Hopkins Institute for Clinical and Translational Research randomly selected 500 participants from the Clinical Research Management Services list to receive a survey by email if they were involved in a research study at Johns Hopkins within the last 6 months. The survey, adapted from Kost et al Clin Trans Sci 2014 Dec;7(6):430-40, asked a variety questions, including why it is important for them to join a study, and to rate the care they received from the research team. The response rate was 34%. This survey will be administered semi-yearly. Survey Results July 2018 Survey January 2018 Sept 2017 … Continue reading

MyChart Recruitment


Through Epic, we now have the ability to invite patients to studies using MyChart. Inviting patients to participate in research studies through MyChart is a new recruitment approach. In an effort to reduce unnecessary communication, the messages are targeted to patients who may be interested and eligible for studies.  The use of MyChart for recruitment requires IRB approval, and extensive care is taken to protect patient privacy. To safeguard patient privacy, PIs and research teams will not be able to see PHI. Patients can always opt out of receiving future invitations through MyChart.  A patient may either email us at … Continue reading

PURE Elsevier (formerly SCIVAL/JHU Experts Research Profiles)


This research tool (which uses the Elsevier PURE model) allows JHMI faculty to identify biomedical experts and their publications by areas of expertise. Designed to facilitate faculty research and project collaboration, the information is based on the published output indexed in the PubMed database. To view the site visit https://jhu.pure.elsevier.com/. If the answer to any of the questions below is yes, this database can likely help you: Do you need to put together multidisciplinary teams to tackle translational and big-science research projects? Could you use help to keep up with the constant influx of new faculty who might be working in an … Continue reading

Contact Us


JohnsHopkinsU (SOM, SON)– Anthony Keyes, Nidhi Atri, Prince Nuamah registerclinicaltrials@jhmi.edu Oncology (SKCCC)– Monica Owens (Jhcccro@jhmi.edu) JHSPH– Miye Schakne (mschakne@jhsph.edu) Kennedy Krieger Institute – Elaine Stashinko (stashinko@kennedykrieger.org) All Children’s Hospital – Jan Wencel (jwencel1@jhmi.edu)

Events and Workshops for Researchers


To see event summaries from other related workshops, please visit our news feed. Advancing Research in the Digital Age February 27, 2018 This conference focused on building institutional knowledge around research consenting, recruiting and data collection in the informatics age. The goal is to help Johns Hopkins researchers learn what digital technologies are available and how to utilize these tools in human subject research. Agenda Webcast Presentations   Nuts & Bolts of Community Engagement in Research Workshop   December 1, 2017 This event was hosted by the ICTR in collaboration with the University of Maryland and Morgan State University.  A diverse … Continue reading

2017 Henrietta Lacks High School Day


Chesapeake Regional Information System for our Patients (CRISP) Database


Chesapeake Regional Information System for our Patients (CRISP) CRISP is a regional health information exchange (HIE) serving Maryland and the District of Columbia. This a non-profit organization is advised by a wide range of stakeholders who are responsible for healthcare throughout the region. CRISP has been formally designated as Maryland’s statewide health information exchange by the Maryland Health Care Commission. Health information exchange allows clinical information to move electronically among disparate health information systems. The goal of the HIE is to deliver the right health information to the right place at the right time – providing safer, timelier, efficient, effective, … Continue reading

Recruitment Conference 2016 Presentations


Breakout Sessions Building Trust & Engaging Participants in the Entire Research Process Ken Getz Measuring the Impact of Recruitment Efforts (pdf) Rhonda G. Kost Digital Approaches that Work Jennifer Creasman Use of Mobile Devices to Engage Research Participants Jason Kadrmas Melissa Mueller Practical Guidance on the Use of Social Media for Recruitment Appendix A & B Luke Gelinas Creating Authentic Community-Academic Partnerships in Clinical Research:  Chicago Area Patient Centered Outcomes Research Network’s Patient and Clinician Advisory Committee (PCAC) Doriane C. Miller Recruitment and Retention Wrap Up Lee Bone Janice Bowie From Clinical Trial Research to Reality: Recruitment, Retention, and Community-Engaged Research Sherrie … Continue reading