Does the OpenSpecimen Team offer storage for specimens?


The OpenSpecimen Team does not store specimens, but the following research cores have specimen storage facilities: GRCF Core Biorepository & Cell Center https://grcf.jhmi.edu/biorepository-cell-center/ Director:  Melissa V. Olson, Ph.D. 410-955-6327, mvolson@jhu.edu Johns Hopkins Biological Repository Bloomberg School of Public Health http://www.jhsph.edu/research/labs/biorepository/contact.html Director: Dr Homayoon Farzadegan 410-955-3786, JHBRLab@jhsph.edu Hopkins Conte Digestive Diseases Basic and Translational Research Core Center http://jhugicc.org/GIConteCenter/pages/cores/translationalResearchEnhancementCore.html Translational Research Enhancement Core (Biorepository) Director: James J. Potter 410-614-0130, jpotter@jhmi.edu

Is there additional detailed information about the service?


To view slides from the September 30 workshop, visit: An Introduction to OpenSpecimen Presenters; Jim Potter, Matt Marcetich, Bob Lang, Jennifer Parks, Pam Murray and Diana Gumas; shared how OpenSpecimen can enhance the Precision Medicine Initiative.    

Is there somewhere I could test OpenSpecimen publicly?


Yes. A public demo site (non-JHU) is available for testing here: demo.openspecimen.org, and you will be prompted to sign up for an account. JHU has a Test instance available, and the OpenSpecimen Team would be glad to set up a demo with you and explain further.

Could you tell what open source means? What does that mean for our study?


OpenSpecimen is an open source web application developed by Krishagni Solutions, a software vendor. The application source code is freely available to download, install and even modify under the open source BSD 3-clause license (https://github.com/krishagni/openspecimen/blob/trunk/LICENSE.md). IT@JH has installed an instance of the OpenSpecimen application and underlying database on our own secure servers behind the Hopkins firewall. In other words, your data safely reside on JHU servers.

Who has Super Admin privileges and how secure is my data?


Only members of the OpenSpecimen Team have Super Admin privileges. Admin privileges can be granted to study PIs and other members of the study team at the discretion of the PI; additional users can be provisioned by the study team. Users can access data for their studies only.