Resources for Cohort Retention

Improving Long Term Outcomes Research

This NIH-funded “national infrastructure” grant (R24HL111895), aims to provide resources for longitudinal clinical research studies.

The following resources are freely available from the project’s website (

  • Database of common patient-reported and performance-based outcome measurements, and standardized information about these measures.
  • Adaptable tools, templates, and manuals to maximize cohort retention (including an interactive database with >600 retention strategies abstracted from a recent systematic review).
  • A statistical tool to address the competing risk of mortality when evaluating functional outcomes.