Research Participant Satisfaction Survey Results

Twice a year the ICTR evaluates the satisfaction of participants enrolled in Johns Hopkins research.

December 2016 Survey

171 participants completed Johns Hopkins’ Institute for Clinical and Translational Research December 2016-January 2017 Research Participation Satisfaction survey.

Results demonstrated that participants were largely satisfied with their experiences in research studies:

  • 94% stated that they would probably or definitely recommend joining a research study to their family and friends
  • 95% stated that they were told what was going to happen in the research study
  • Over 95% stated that research team members usually or always listened carefully to them and treated them with respect

Participants answered questions regarding reasons to participate in a study, results demonstrated the following:

  • 92% stated that finding out more about their disease was a somewhat or very important reason to join a research study; over 97% stated that helping others was a somewhat or very important reason to join a research study
  • 95% stated that earning money or payment was not important to their decision to join a research study
  • The majority of participants stated that improved health or quality of life, finding out more about their disease, gaining new access to treatment, helping others, the health center’s reputation, and concern about the study topic were very important reasons for staying in a study
  • 73% responded that a summary of overall research results shared with them would be important for them in future studies

 

To view the complete survey, click here.

For more information, contact Liz Martinez, Research Participant Advocate.

 

Any publication including mention of the use of the Instruments shall include appropriate reference to their origin or citation when available, and acknowledgement of grant number UL1 TR000043 as follows: “Supported in part by grant # UL1 TR000043 from the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health (NIH) Clinical and Translational Science Award (CTSA) program.”


July 2016 Survey

In July 2016, the Johns Hopkins Institute for Clinical and Translational Research randomly selected 500 participants from the Clinical Research Management Services list to receive a survey by email if they were involved in a research study at Johns Hopkins within the last 6 months. The survey, adapted from Kost et al Clin Trans Sci 2014 Dec;7(6):430-40, asked a variety questions including why it is important for them to join a study and to rate the care they received from the research team. The response rate was 34%. This survey will be administered semi-yearly.

To view the complete survey and results, click here.  

For more information, contact Liz Martinez, Research Participant Advocate.

 

Any publication including mention of the use of the Instruments shall include appropriate reference to their origin or citation when available, and acknowledgement of  grant number UL1 TR000043 as follows: “Supported in part by grant # UL1 TR000043 from the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health (NIH) Clinical and Translational Science Award (CTSA) program.”