Cohort Retention

Improving Long Term Outcomes Research

This NIH-funded “national infrastructure” grant (R24HL111895), aims to provide resources for longitudinal clinical research studies.

The following resources are freely available from the project’s website (

  • Database of common surveys and tests for evaluating physical, cognitive, mental health, and quality of life outcomes, and standardized information about these measures.
  • Adaptable tools, templates, and manuals to maximize cohort retention (including an interactive searchable database with >600 retention strategies abstracted from a systematic review).
  • A standalone statistical application to address “truncation due to death” when evaluating functional outcomes.